What We Do
The Osteosarcoma Collaborative (OSC) brings together data, researchers, patients & families to find new cures for Osteosarcoma.
We do this through advocacy, fundraising, education and awareness regarding the disease. The OSC will support new treatment options for patients diagnosed with this extremely aggressive and often recurring disease.
Patient Resources
- MEPACT patient information
- Osteosarcoma Decision Aid
- What to look for in a clinical trial
- Genomics and how this applies to Osteosarcoma
- Organizations offering patient comfort, financial resources, wish granting resources, and bereaved family support.
Funded Research
- Alex Huang
- Raised $1.5 million
- 3-year research grant in collaboration with St. Baldrick’s
- OS Therapies
- OST trial – PhIIb clinical trial in recurred resected Osteosarcoma
- First Patient enrolled on October 21
- 12 of 39-45 patients enrolled at 12 sites of 20 COG locations across the country
- Janet Panoch, PhD
- Funding for Osteosarcoma Decision Aid (YouTube video)
- An online, interactive tool to provide information to newly diagnosed patients
Current Focus
The Osteosarcoma Collaborative teamed up with several well-known pediatric cancer foundations to fund a $1.5 million “Fight Osteosarcoma Together Super Grant.” The goal of this grant is to rapidly translate the research into a clinical trial that will benefit patients within three years. We are proud to be in our third and final year supporting Dr. Patrick Grohar at Children’s of Philadelphia who was selected as the recipient of this grant after a thorough scientific review process led by the St. Bladrick’s Foundation. Learn more about this new osteosarcoma grant here.
Collaboration
- Osteosarcoma Information closed group on Facebook
- Round tables for researchers & clinicians
- Count Me In Osteosarcoma Project
- Bone Cancer Research Trust bcrt.org.uk
Partners
