Patient Comfort & Support
Casey Cares Foundation
Providing programs to support families of patients and bereaved families living in the Mid-Atlantic region, Florida and portions of the Midwest. Programs include family outings, Birthday Blasts, Celebration Vacations, Kami’s Jammies, Caring Connections group events, and more.
Ryan’s Case for Smiles
Offering colorful pillowcases for brightening the rooms of childhood cancer patients with chapters nationwide. Their website is full of resources for those dealing with life threatening illness. Also see their Coping Space https://copingspace.org/ page, as well as the siblings page.
Never Ever Give Up – Team NEGU Jesse Rees foundation
Supporting kids with cancer and their families through Joy Jars and family fun.
Provides custom celebration cakes and other treats to families impacted by the critical illness of a child.
Kisses for Kyle
Helping families battling childhood cancer throughout the Delaware Valley . Organization holds outings, sends gift cards and other items to warriors and super sibs.
Making It Better for kids with Osteosarcoma
MIB Ambassadors support OsteoWarriors in their area who are in active treatment. Ambassador Sponsors support this program with donations for MIB Agents’ Totes. MIB Totes provide both items of comfort and necessities while in treatment.
MIB also offers a book to help new patients, which they give for free.
Stillbrave Childhood Cancer Foundation
Stillbrave’s mission is to provide non-medical, supportive care to children with cancer and their families through their renegade backpack and All-Star Sibling programs.
Sending care packages to pediatric cancer patients and their families was Mathias’ idea and he gave specific instructions on what should be included. Mathias felt strongly that the care packages should include items for the entire family, especially siblings, and he wanted every patient that received a package to know it was made just for them.
The Sweet Julia Grace Foundation
The Sweet Julia Grace Foundation has created four primary programs for providing assistance to families who have Raindancers. Our Programs are developed to further our mission of ‘filling in the gaps’ that other services are unable to fill, so families with children who have special needs or who are going through a medical crisis can be properly supported. We envelop a family into a warm, comforting embrace while providing them with resources, assistance, emotional support and guidance.
Providing services and support including art & music therapy, patient & caregiver support programs, housing, financial support, and Smile Maker programs.
Momcology is a national 501(c)(3) nonprofit organization committed to extending the benefits of community by providing reciprocal peer support models for families affected by childhood cancer. We provide modern and intuitive national platforms for primary caregivers to connect with each other, support one another, seek current and timely information, and begin the long-term healing process after a childhood cancer diagnosis through a strong, resilient and educated peer support community. Establishing a supportive peer community is an important piece to navigating life after a childhood cancer diagnosis by both giving and receiving support. Momcology has filled this gap in care through creating both online and in-person peer programs.
Note that their online FB group has helped thousands of families, this is a great organization that many in the collaborative have found helpful.
Hosts for personal pages to journal and share your family’s journey Many people use this site to keep friends and family updated.
Lotsa Helping Hands
A central place to coordinate meals and help for friends and family.
Group Loop is a safe place online for teens with cancer away from the daily pressures of classes, after school activities, family and work responsibilities, let alone treatment schedules. Many teens with cancer are unable to leave their homes, drive cars, or attend social activities. Group Loop will serve as a unique place for teens with cancer to “connect” with other teens and forge friendships while battling unwanted aloneness, loss of control and loss of hope associated with the disease (description from site).
Adolescents and young adults have very specific concerns and needs when faced with a cancer diagnosis. This is the time when you want to meet others, focus on school and start a family. A cancer diagnosis can present many challenges, and we’re here to help you (description from site).
We offer a lifeline to the young adult cancer community by helping those in need feel normalized and connected to their peers. We end isolation and educate our community about the age-appropriate resources they didn’t know they needed, to navigate the crap with dignity and on their terms. Our mission is to empower, support, and improve health outcomes for the young adult cancer community (description from site).
Young Adult Cancer Canada
This is where we “share our sh*t”, literally and figuratively. It’s for those who are ready to leave pediatrics or have already gone, but are nowhere near geriatrics. Beware, this isn’t only about ranting; while we definitely recognize the importance of a good rant. The Real Time Cancer Community is all about the open, honest, pursuit of the positive, so all the stories you find here will be from the heart and inspiring (description from site).